Pulling myself out of the mud BeiYin
There is currently no cure for Fibromyalgia, and no standardized treatment protocol.
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BeiYin: Not knowing the cause, we might think that it is not just one influence which has triggered the symptoms which then are labeled as 'fibromyalgia'. It is possible that an accumulation of various influences after some time caused a damage. Probably the first initial reason lays on the most basic level: the cells. Toxins, radiation and other factors are finally causing that the immune system gets weak and can't defend the system against viruses, bacteria, candidacy, etc. producing then part of the symptoms. The body system tries to
defend itself and produces reactions, so more symptoms showing up. These could be understood as 'healing reactions', but they are treated with antibiotics, etc. The system gets out of balance and more symptoms appearing in organs all over, or reactions like allergies appear.
Years after years the symptoms were treated with allopathic medicine, starting already in early age with the common children sicknesses, going on many times with all kind of infections and other reactions showing up in daily life. From a hick up, headache, constipation to all kind of pain. There were always a fast medicament at hand. But did we ever ask for the cause of our troubles? Did the doctors investigate about it? Did any med. doctor ask ever about our eating habits? Or all the other habits of our life which are important for our well being?
One thing seems to be pretty clear, that if we want to find the cause, then we need to look much more ahead then just in front of our nose. We need to quest every thing. The cause of fibromyalgia is probably much more complex than we can imagine. The cause for sure not only lays on the body level, it might be caused by our attitude, our way how we express ourselves, the way we defend ourselves or in how far we are open to influences, etc. etc.
To be healed we need to look at all of this. What makes it so difficult is the fact that we are practically alone. There is very little support. Yes, maybe there are people who take care of us, but they can't understand that with this disease there is also a change happening which includes our personality. We are not the same we have been before and as they know us. Somehow we feel totally alone and insecure. We have probably lost our esteem, the ideas we had motivating us to go ahead, are fading away, just because there is no energy left. We still want to do something, but then there is this fog in our head and then we can't do what we would like. That doesn't make it better. We are caught in a vicious circle. Because of lack of energy we are not doing what might help us to get better or just what might make us feel better, so then we are feeling worse, etc. When I write this down, then I remember a story from Münchhausen I read fifty years ago, when Baron Münchhausen was going down in the mud and then he pulled himself out by his own hair (queue).
Is this what I need to do now? This is a challenge which goes far beyond the usual personality games in one's daily life. This disease might be a chance to do a step into new fields. Forcing oneself into taking responsibility for oneself, stepping out of dependency and identification with worn out roles. This disease might be a necessary step within one's growing process which can't be gained without it's special condition of being lost in an unknown field.
BeiYin: You are right, in the momentary medical care there is no cure for Fibromyalgia. Most medical doctors even don't know what FM is. I went for several years with different symptoms from one doctor to the other and as no one could find any organic failure, they gave me vitamins or wanted to give me antibiotics, cortisone or pain killer - which I never took. A few doctors know something and they are telling that it is only in one's head. The only 'care' medical doctors mainly are giving is medication with chemicals. I guess we
went all through this... I wrote the following story when I went to a medical doctor and he wanted to convince me to take anti depressives. See:
When my symptoms got worse and I started to get seriously worried, one Sunday morning I watched a TV program with lectures from med. doctors, this time a doctor was talking about Fibromyalgia and so it was clear without any doubt what my symptoms were about. From then on I could investigate and doing something about it. But I had lost several years and was feeling pretty bad after that long time without having done anything.
So far my history with doctors. Due to the Internet I was able to investigate and could find alternative ways of dealing with this disease. I tried many things which convinced me...
I have told about this all at my Web site, you can visit if you are interested.
One thing more about the financial aspect: I have no health insurance and not having much money was the reason why I stepped out of insurance 25 years ago. So I had to pay every treatment and visits to doctors and healers by myself and of course also the dentist. But I never was seriously ill and my teeth are still pretty good. All I am doing since about two years to treat the Fibromyalgia cost very little or nothing, except the ozone generator which I
bough after two series of treatment by a medical doctor, who made me a special price, although still expensive... But I noticed very quick that this treatment was helping me and now I am convinced, that the ozone has a big part in my healing process.
Before I subscribed to the news group 'alt.med.fibromyalgia' I had the thought to develop a cheap ozone generator and to offer it to FM sufferer, but I dropped this idea after I read all the comments with that much resistance against every thing which is not the traditional way. If I would sell something, then those 'troll hunter' would use it as a reason to put me into the box of scammer, spammer and trolls. So I am selling absolutely nothing. I am just offering my Testimonial.
I feel recovered and I wanted to share my experience in this NG, but now after three weeks posting and reading all those negative reactions, I don't feel good. I see that those negative energy coming from all these sick people sucks my energy. Now I am avoiding
to read comments from those people I know for their defensive manner.
Also I must say that I was too fast dropping all the treatments I have done for more than one year. And also I worked too hard the last weeks... and on top of this too many hours at the computer. I had to learn that it is better to reduce the frequency of the treatment slowly. So from now on I will for example take a ozone sauna every third day and not every second day like I have done during the last half a year.
I am telling you all this, that maybe it becomes clear, that seeking for medical care for a cure for Fibromyalgia indeed will not result. But this doesn't mean that there is no cure.
The condition to be healed is that one goes out of dependencies and old ways of stuck thinking. What is needed is self responsibility and the decision to do something by oneself, without depending on anybody, any authority or established health system.
I know this is hard to do, especially when one is feeling desperate and tired. But it might be a first step to drop things and habits which are unhealthy. This costs nothing and might start the healing process by giving enough energy to do the next step.
Comment: Probably it will be a long time before one will know the cause of Fibromyalgia due to it's complexity and due to the lack of interest in research.
BeiYin: Yes, it will be a long time. Although one might know the cause, it will be impossible that others listen to any information about it. There is not only a lack of interest, there is resistance to such an extend that nobody is open and listening if there is something which doesn't fit in one's view.
The cause for Fibromyalgia indeed is complex and to know about it one needs to extend oneself into the same complexity. What would mean to go beyond one's personality, because only then the 'cause' can be seen and understood.
With other words: The cause for Fibromyalgia lays in the disconnectedness of the individual from the complexity of life. The cause is that the individual is centered and limited to an encapsulated existence which lacks connectedness to it's source. This is the core reason which splits up because of this to many other causes as a result from not being able to relate to reality but being focused on substitutes: Concepts on one side and consumerism on the other, with all destructive results in the environment and the individual.
To be able to understand the 'core reason' one has to go beyond one's personality and here lays the main problem, because the individual is identified with one's personality and gets one's feeling of existence out of it. So everything which confirms one's existence is welcome and what doesn't is rejected. This explains the reactions of people to everything which doesn't fit into their view. In general as their world view and particular their self image.
The wall of protection seems to be impossible to overcome, the defense is firm and in a group they are supporting each other.
But as the symptoms are getting stronger and stronger, even with medication, the individual is breaking down. The goals set up by society are vanished or reduced to a minimum.
3-5% of the population have Fibromyalgia, not mentioned the other diseases like cancer, aids, etc., so only with Fibromyalgia there might be 100 million people on this planet! If there are only 1/100% (one out of 100.000) of this people ready to get out of the established thinking, then this would be 10.000 persons! If there would be just 100 and these people
would express themselves and give their testimonial about their personal healing process, then it would make a big difference. I am for sure that then others would question their situation and start to open up to find out more...
I only can say, that now after more than one year, when I had posted the first article in this thread, I am convinced that I have recovered from Fibromyalgia. I see pretty clear about it and I understand that it is normal that in a group of 6.000 subscribers there might not be even one who is interested to know about it. But the fact that I am now nearly totally free of any pain and that out there are people suffering to an unbearable extent from pain should maybe trigger some questions and animate to search about it.
Comment: You are using the term 'recovered' does that mean you believe you are 'cured'?
BeiYin: I haven't found any report about 'extended remission from FMS'. I am very
interested in this subject and would like to know what has caused the remission, etc.
I have never wrote that I am 'cured' or 'recovered', I wrote that I am 'recovering'. What means that I am nearly pain free and that my energy level is going up more and more. There are days when I am working physically very hard, which I couldn't have done half a year ago, but now I still feel good, even I am not so strong I used to be and the next day my muscles are hurting. But this is a reaction because I haven't used my muscles for a long time and I only need one or two days to recover from this pain. My brain fog is nearly gone only when I am tired my mental capacity is slowing down, so even my speech is slow. My memory is much better but still my short time memory lacks sometimes, but I am comfortable with it not needing to remember people's face or name...
A few weeks ago when I had dropped all the treatments like sauna, ozone, diet, even meditation, etc., then my energy went down, although no pain came back. But this told me that I should go on with my treatments, just not doing it that often like before. And this I am doing now and again I feel good. So I believe that because the FMS had developed in more than ten
years, maybe even in thirty years, because I had the first symptoms thirty years ago, it will need some time before I might be really 'cured', - I am convinced that I am on the right path with what I have discovered...
But I don't like so much the word 'cured'. Because it means 'cured from a disease' what shows the attitude and belief that a disease is something 'bad' which happens to one as a victim. So people look for a 'cure' by taking or doing something AGAINST it. I see it very different. I have written a lot about it and don't want to repeat myself. Disease for me is
part of a 'healing process' in which one has to take part intensively, etc. There is nothing to 'sell' and nothing of approval by the FDA.
This 'healing process' is part of one's life in a 'growing process'. To be healed one must be engaged, be responsible and independent of used authorities. To be able to engage oneself one need to enter into 'self knowledge', just understanding and clearing up some basic conditions of one's personality. In the evolutionary situation of humanity this is hardly
possible and a real problem. So it is nearly impossible to communicate with each other about it...
Comment: You claim being cured of something that is incurable!
BeiYin: I do not claim anything. For sure Fibromyalgia is incurable by the traditional way of taking medication which does not ask for the reason of a symptom or seeing a person as a whole where all parts are connected with each other and influencing each other.
Fibromyalgia is just a name for a syndrome of symptoms like with many other diseases as well. Claiming that a disease is 'incurable' shows that the established medical way of thinking is stuck in a guildesack and can't give any creative solution. (Apart of that a huge business world is behind all treatments, were the main goal is to make more and more profit...)
When I want to share my healing process with people who are suffering and who are stuck and dependent on a worn out system, then for sure not to get anything back. I was so lucky to have a favorable background which had allowed me to take the pain without
going into the trap of chemical treatments like pain killer. anti depressives etc. And I had the outside support from the community in which I live, so that - even being exhausted - I were able to investigate and so could find my way towards the healing. It is only a few weeks that I feel recovered. I am tired due to the extreme summer heat and too much work and I will probably need a few months more to be sure that I have really recovered from Fibromyalgia. I
still can't sleep more than three hours, then I need to do something for about one hour and then I can go back to sleep. So this might still be a symptom of FM. But I am pain free and there is little brain fog left, except after reading the posts in this thread...
Comment: Instead of selling a product, you are "selling" a lifestyle. Your "personal healing process" is just that - yours!
BeiYin: I though a news group is a space were people are sharing their individual experiences. This was the reason why I posted in this NG. When you see it as a 'selling of my lifestyle' then this tells me that you are in such a defensive position that you are not
open for any thing which does not confirm your believes, opinions, self image, etc. So there is lacking the minimum condition for sharing.
Isn't it the 'lifestyle' which makes people sick in the first place? This is known and so obvious that even the most ignorant person can't deny it. So when the lifestyle has made you sick then isn't it pretty clear that only a change in one's lifestyle can create the basic condition to be healed? If it would be possible to buy a certain lifestyle, that would make it easy, but this is not possible: One's lifestyle is so much connected with one's history, one's behavior and one's identification - with other words: with one's personality - that only a long and intense process can bring a change.
This indeed is a "personal healing process" and can't be sold or bought. There could be a "sharing", but as I have to realize now from your reactions, this also seems to be impossible. As you ARE your lifestyle, you are defending it with all means and so you are not able to receive anything. I can't help it, that's what you chose and I will not insist of giving something you don't want. So I will withdraw myself from this news group. In case there is someone who is willing to jump over one's own shadow, is invited to go to my Web site or is welcome to write me an email.
BeiYin: 'Healing oneself' is like a mosaic which one has to build by oneself. To find the right pieces of the puzzle it needs individual research, being capable to select from the big pool of information.
To do so it needs a certain overview: A 'bird view', which only can be gained by going beyond one's personality which is limited and bound to 'frog view'.
There is no cure by clinging and concentrating on one piece of the puzzle. As there is no healing by treating symptoms with medication. What allows the healing is the combination of all the pieces together. To find those pieces is by itself part of the healing process and is hard individual work. Nobody can do it for oneself, except that there might be some hints which can be received on one's journey.
If one is dependent on outside authorities then there is no possibility to enter a healing process - so there is no cure. The first step then would be to get out of these dependencies and with this there opens an unknown fields, leaving frames of habits and the usual security behind...
For sure this is not for every body suitable, but who has suffered enough and is aware of the many manipulations happening, around every thing and also within the health system, might be ready to look for an alternative solution.
I have done this. I went through the process of healing from Fibromyalgia and so I am able to talk about it. I can say that I have recovered and that the statement that there is no cure is
Comment: Did you really have Fibromyalgia? Are you sure?
BeiYin: To answer your question: YES, I am sure.
I can understand that a post longer than a few lines might be difficult to read. I had the same only a few months ago, when I could not read anything longer than six lines. I could not even read email directed personally to me. I could not concentrate at all and my short time memory had gotten so bad that from one moment to the next I didn't remember anything. There were times when the brain fog was so bad that I didn't want to talk or even to see people, I got so dizzy that I couldn't walk anymore, nearly going to faint...
So I am sorry about the long posts, but I don't see a way to express what I need to say in a short way. I can do it, because I used to write a lot of Haiku and there it is possible to express something very condensed in only three lines. But this needs a reader who knows already what the essence is.
The question is if you want to enter a 'process', what means that you engage yourself. The condition for this would be that you are tired enough of suffering, that you do the effort to spend the little energy which is left, into the intention to find out about the cause and the background of your disease. I went through this and I know that this is extremely hard. But I can ensure you that at the end of the tunnel there is light! But nobody can make it or give it to you, you have to find out yourself. As I said it before: Meditation is basic and essential for this!